H.R. 2678 — Ellie’s Law

This section states congressional findings on brain aneurysms, including their prevalence (6.8 million unruptured cases, affecting 1 in 50 people), annual ruptures (30,000), fatality rate (50% of cases), permanent neurological deficits among survivors (66%), demographic disparities (higher occurrence in women at a 3-to-2 ratio over men and higher rupture rates in African Americans at 2.1-to-1 and Hispanics at 1.67-to-1 over Caucasians), economic costs ($2 billion in annual pre-insurance direct costs and $114,000 median patient payments), and low federal research spending ($2.94 per afflicted person annually). It also recognizes individuals who died from ruptured aneurysms and notes advancements from the first three phases of the International Study on Unruptured Intracranial Aneurysms (ISUIA).

This section authorizes $20 million for each of FY2026 through FY2030 to the National Institute of Neurological Disorders and Stroke for comprehensive research on unruptured intracranial aneurysms, including studies of a broader patient population diversified by age, sex, and race, with funds remaining available through September 30, 2033. Such funds must supplement, not supplant, other funding available for brain aneurysm research.